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From the Heart is an Australia and New Zealand Fontan Registry research study open to children, young people and adults with a Fontan circulation, and their parents and siblings.
The study is focused on better understanding the health, wellbeing and experiences of people of all ages with a Fontan circulation, as well as the experiences of their parents, brothers and sisters. The study is coordinated by Laura Mitchell at the Heart Centre for Children and the University of NSW in Sydney, in collaboration with the ANZ Fontan Registry and involves filling in one questionnaire at home.If you or your child are a part of the ANZ Fontan Registry and would like to know more about how to participate in this study, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to: firstname.lastname@example.org
Click here to take a look at our latest study newsletter.
Laura and the From the Heart study team
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