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RECENT NEWS & EVENTS

Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

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Welcome Charlotte

Posted by Kylie Flament on 20 January 2014
We are delighted to welcome Charlotte Verrall into her new role as the Fontan Registry Coordinator.  Charlotte comes from the UK and has a science degree and several years' experience working with children and families.  She will work with us part-time, giving information to families about the Fontan Registry and coordinating relevant research projects.  For more information about the Fontan Registry, click here.
Posted in:Staff  

Children's books needed

Posted by Kylie Flament on 16 January 2014
We are in need of more children's books for our waiting room (for kids and families to read while they're here, or purchase for $2, which goes towards purchasing new equipment for the Heart Centre).  Please feel free to drop or post books in anytime.  Contact Kylie on 02 9845 2326 if you can help in any way.  Thank you!!
Posted in:How you can help  

Join us for the Color Run

Posted by Kylie Flament on 14 January 2014
The Color Run is coming to Sydney Olympic Park once again on Sunday 9 February and we will be there, raising money for the Heart Centre for Children.  We would love to have a few more people on our team, so sign up via The Color Run and look for our team, The Pacemakers.  The morning event has sold out so get in quick!  Tickets for the afternoon are on sale from Wednesday 15 January.  Please call Kylie on 9845 2326 if you have any questions.
Posted in:FundraisersHow you can help  

Merry Christmas

Posted by Kylie Flament on 20 December 2013

Wishing all of our patients, families, staff, supporters and visitors a very safe and happy festive season.  Thank you to Rachael who baked these amazing cakes for us recently - you spoil us!  And thank you to Precious Hearts who have once again put up a beautiful Christmas tree and surrounded it with gifts for patients who will be with us on Christmas Day.  No one wants to spend Christmas in hospital, but it is thanks to kind and generous people like you that it is made just that little bit easier. 

Thank you to everyone for your support of the Heart Centre this year.  It has been a busy one, with lots of good news, groundbreaking research and great new equipment.  Very best wishes from the whole team here.

Posted in:Other  

Congratulations Daniel

Posted by Kylie Flament on 10 December 2013
Daniel, one of our heart transplant patients (whose story is available here) wrote to us to let us know that he got his P plates recently - and then sent us this great snapshot.  Congratulations, Daniel!  Drive safe.
Posted in:Patients  

Thank you Speckled House

Posted by Gabbie Scarfe on 5 December 2013

Linda at Speckled House has kindly sent us a big box of baby blankets and storage hampers for our ward.  Thank you so much Linda and team, they're beautiful and will be wonderful for our little patients.

Anyone who is interested can find these items and more at www.speckledhouse.com

Posted in:Thank You's  

Looking for PhD students

Posted by Nadine Kasparian on 2 December 2013
Call for expressions of interest for PhD students who would like to research psychological aspects of paediatric heart disease. The Heart Centre for Children at the Children’s Hospital at Westmead, in collaboration with the Australia and New Zealand Fontan Registry and Sydney Children’s Hospital, is seeking Expressions of Interest from individuals interested in completing a PhD in childhood heart disease research, specifically in the areas of psychology and quality of life. The full-time PhD would begin in March 2014, and be completed within 3 years with the support of an expert multidisciplinary team. EOI's should highlight the academic and/or clinical quality of the applicant and need not be accompanied by a project plan. However, if the applicant would like to suggest a particular project that is aimed at extending or translating evidence-based care for infants, children and young people diagnosed with heart disease and their families, this is also invited....
Posted in:Research  

In Memory of Madi

Posted by Kylie Flament on 28 November 2013
Rachel and Mathew lost their 10-year-old daughter Madi to heart disease in 2011 and miss her every day, but they are turning a tragedy into a drive to prevent other families from experiencing the same loss through raising money for research.  The Heart Centre for Children is working hard to understand Congenital Heart Disease (CHD), the causes of it, different treatment options and how to support families in their journey.  To find out more about Madi and her family's fundraising quest, and to donate, head to In Memory of Madi.  For more about our research programme, visit Kids Heart Research.
Posted in:ResearchFundraisersHow you can help  

Fontan for Life

Posted on 26 November 2013
Fontan for Life
William was just 38 hours old when he underwent his first heart surgery.  In his short life he has undergone three heart surgeries at the Heart Centre for Children – culminating in the Fontan procedure which he had last year. Now, at six years of age, his mother Lisa Chamberlin says he is a completely different child, who is active and loves to run around with his brother. William is one of over 900 children and adults who are taking part in the largest heart study of its kind in the world, the Fontan Registry and who, this month is hoping to raise awareness of the registry during a campaign called ‘Fontan for Life’ which aims to raise $200,000 for the registry. The Fontan procedure is a lifesaving medical technique used to treat children born with certain serious heart defects. The procedure involves restructuring the heart so that it can operate effectively using only one ventricle, or pumping chamber, as opposed to two. The Fontan procedure is relative...
Posted in:ResearchFundraisersHow you can helpMediaPatients  

Volunteers Needed

Posted by Kylie Flament on 21 November 2013
The Children's Hospital at Westmead is looking for volunteers to help with sibling care.  This is a service that we offer families so that siblings of patients can have some time out, playing games, doing craft activities and meeting other kids.  It really helps to be able to give parents a little bit of time to meet with doctors, surgeons and other hospital teams when they need to.  Kids can be in sibling care for an hour or half a day or more, and range from toddlers to pre-teens. The volunteers department is particularly looking for someone who can work Wednesday and Thursday afternoons in sibling care, and would prefer someone with childcare experience.  But they're always looking for help in all sorts of areas, such as escorting families around the hospital to help them find their way, running the volunteer shop or market day, or helping a department with administration work. If you can spare some time, please get in contact with the Volun...
Posted in:How you can help  
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