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We are very pleased to announce the launch of our latest research study, "From the Heart". This study is looking into the health and well-being of children and adults with a Fontan circulation and their families. It is being coordinated by Laura Mitchell through the Heart Centre for Children in Sydney and The University of New South Wales, and is a collaboration with the ANZ Fontan Registry.
Through "From the Heart" we are hoping to learn more about the individual experiences of people with a Fontan circulation, as well as the experiences of their parents and siblings. We believe it is really important to understand the experiences of everyone within the family, and it would be great to have as many people as possible take part! If you or your child are not in the ANZ Fontan Registry but would like to be, or your contact details have changed, please contact us as soon as possible via: http://www.fontanregistry.com/
If you would like to know more about how you can be a part of this important research, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to: firstname.lastname@example.org