Sending in Your Referral
Support Us


Coronavirus (COVID-19)

Mar 27 2020
Many people in our community are feeling worried about COVID-19, our team is here to support you. Please visit our dedicated COVID-19 informati...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

Halor's story

Jun 23 2017
One of our patients, Halor, was featured on The Children's Hospital at Westmead's Facebook page this week:     ...

To view groups of News & Events, please click on one of the following categories:

Awards Fundraisers Patients Thank You's
Doctors Work How You Can Help Research Visits
Equipment Media Staff  



Home >  Blog >  Study launch: From the Heart

Study launch: From the Heart

Posted by Nadine Kasparian on 10 February 2016

We are very pleased to announce the launch of our latest research study, "From the Heart". This study is looking into the health and well-being of children and adults with a Fontan circulation and their families. It is being coordinated by Laura Mitchell through the Heart Centre for Children in Sydney and The University of New South Wales, and is a collaboration with the ANZ Fontan Registry.

Through "From the Heart" we are hoping to learn more about the individual experiences of people with a Fontan circulation, as well as the experiences of their parents and siblings. We believe it is really important to understand the experiences of everyone within the family, and it would be great to have as many people as possible   take part! If you or your child are not in the ANZ Fontan Registry but would like to be, or your contact details have changed, please contact us as soon as possible via:

If you would like to know more about how you can be a part of this important research, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to:

Author: Nadine Kasparian
About: As the Head of Psychological Care and Research, Nadine is engaged in helping patients and families through what is often a very difficult time, and also leads a number of research projects.
Tags: Research
Contact UsPrintBookmark SiteTell a Friend