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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

Posted in Media

Genetics study

Posted by Gillian Blue on 27 May 2013

A/Prof David Winlaw and I recently participated in a study which has been published in the highly acclaimed journal, Nature Genetics. The study identified a region on chromosome 4p16 that is associated with a risk of developing ostium secundum atrial septal defects (ASD). Variations in this region are estimated to account for 9% of the population-attributable risk of ASD.

Click here to read more about the study.
http://www.nature.com/ng/journal/vaop/ncurrent/abs/ng.2637.html

Posted in:ResearchMedia  

Gene Mutations and Heart Defects

Posted by Kylie Flament on 15 May 2013

Our Head of Surgery and Research, A/Prof David Winlaw, was interviewed by Bloomberg this week about new research that suggested around 10% of congenital heart defects may come from spontaneous gene mutations (meaning gene mutations that aren't inherited from a parent).  Read the full article here.

A/Prof Winlaw and his research team are currently involved in a number of studies to better understand the genetics behind congenital heart disease.  For more information, go to our research page.

Posted in:Media  

Heart Mums make the news

Posted by Kylie Flament on 7 May 2013

Zipper TickersA wonderful group of Mums have formed a group called the Zipper Tickers and have been working hard to organise a gala dinner in Newcastle on the 27th of July this year, and were interviewed by The Newcastle Herald this week.  Check out the article here.  Some of the Heart Centre team will be heading up to Newcastle for the weekend so please come and join us to support the Zipper Tickers and raise some much-needed funds for a new cardiac ultrasound (echo) machine for the department.  The more the merrier!  Click here for details.

Posted in:FundraisersMedia  

William & Rijen

Posted by Kylie Flament on 11 February 2013
Two of our little patients shared a special journey with the Heart Centre and became best friends after their third heart operation each.  They shared their story with the Daily Telegraph this weekend. The boys are united in their dislike of blood tests and joke about hiding from the nurses. "We did blood tests today," Rijen said, pointing to the Wiggles Band-Aids on his arms. "It didn't work, so we had to do it here; and then a finger prick. It goes all the way inside. It hurts. Sometimes I'm brave." As a reward for being so brave, the boys earn a "heart bead" for each procedure. They now have mighty necklaces. The black beads represent lousy days, yellow the good days that are special to the parents, who are so grateful for the work of hospital staff. They are all like family now. To view the full article click here ...
Posted in:MediaPatients  
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