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Cardiology transition workshop for adolescents

Sep 18 2018
Not sure about transitioning to the adult health service? Come along to our workshop and hear about living well with congenital heart disease. ...

A lovely letter from a Heart Centre family

Aug 24 2017
The family of one of our patients has written a beautiful letter of appreciation. It shows how many people and various roles work together to ma...

24 Hour Soccerthon

Aug 23 2017
The annual 24 Hour Soccerthon, which is now in its 6th year, will be running from 25-26 August. Each year this event has helped us raise substan...

Posted in Patients

Cardiology transition workshop for adolescents

Posted on 18 September 2018
Cardiology transition workshop for adolescents

Not sure about transitioning to the adult health service? Come along to our workshop and hear about living well with congenital heart disease.

 

Posted in: Research Doctors Work Patients  

A lovely letter from a Heart Centre family

Posted by Nina Klug on 24 August 2017
The family of one of our patients has written a beautiful letter of appreciation. It shows how many people and various roles work together to make the experience as easy as possible for our patients.
Dear Doctors, Nurses and CHW staff Last month my son Daniel was admitted to CHW for open heart surgery. About five weeks before that occurred we also attended your facility for an angiogram in the cardiac catheter laboratory. I am writing to thank those of you who have made a significant event in my life and more so in my son's a wonderful and pleasant event without fault. Dr Jonathan Mervis and his team conducted the procedure in the cat. lab. Dr Mervis is a highly professional doctor who commenced our most recent adventure to CHW with style (this being our fourth surgery not limiting other procedures). Our visit to his lab went smoothly and he managed to clear path for our brilliant heart surgeon to undertake his own role. I am very grateful for Dr Mervis' talen...
Posted in: Doctors Work Patients Thank You's  

Team Harley - City2Surf 2017

Posted by Kylie Flament on 27 June 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing little heart angel Harley and raise much needed funds to the one place that was our second home." Watch a short video of Danielle and Harley's story. Team Harley came together for the City2Surf 2016, raising $43,000 for the Heart Centre for Children.  This year, they're aiming for $50,000, to purchase two ECG machines and some other items for our inpatient area, Edgar Stephen Ward.  For more about Team Harley's efforts, head to the Team Harley Facebook Event page or, to donate, go straight to their EveryDayHero page.  They're also hosting a Night for the Superheroes of the Edgar Stephen Ward.
Date: Saturday 5 August 2017
Time: From 6.30pm
Location: Riverstone Schofields Memorial Club
Tickets: $50
More information: See Facebook page (link above) or contact Danielle on 0424...
Posted in: Fundraisers Patients  

Halor's story

Posted by Kylie Flament on 23 June 2017
One of our patients, Halor, was featured on The Children's Hospital at Westmead's Facebook page this week:     "Born weighing just less than a bag of flour, Halor was a very little baby entering a very big world. Even smaller though was his tiny heart, which due to a serious heart condition, was working overtime to pump blood to the rest of his body. Surgery was vital to fix Halor's heart and is ultimately the reason, 11 years on; he is able to run the City2Surf. This August, Halor will be running as part of City2Surf - Team Bandaged Bear not only to give back to the doctors and nurses who helped him, but also to raise money for other children with heart conditions. You can go the distance #forsickkids too by registering as part of Team Bandaged Bear or by making a donation. Visit www.bandagedbear.org.au/event/city2surf"...
Posted in: Patients  

Piloting a smartphone app

Posted by Kylie Flament on 12 May 2017

The Children's Hospital at Westmead will soon be piloting a new smartphone app that allows patients and families to see their upcoming appointments and, in future, to access important documentation and education.  Some patients at the Heart Centre for Children will be invited to try this app starting from late May.

For more information, visit the My Health Memory overview on the SCHN website.

Posted in: Patients  

From the Heart Study: It's not too late to be part of this important study!

Posted by Nina Klug on 2 February 2017
From the Heart is an Australia and New Zealand Fontan Registry research study open to children, young people and adults with a Fontan circulation, and their parents and siblings. The study is focused on better understanding the health, wellbeing and experiences of people of all ages with a Fontan circulation, as well as the experiences of their parents, brothers and sisters.  The study is coordinated by Laura Mitchell at the Heart Centre for Children and the University of NSW in Sydney, in collaboration with the ANZ Fontan Registry and involves filling in one questionnaire at home. If you or your child are a part of the ANZ Fontan Registry and would like to know more about how to participate in this study, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to: fromtheheart@mcri.edu.au Click here to take a look at our latest study newsletter. Warmly,
Laura and the From the Heart study team ...
Posted in: Research Doctors Work Patients  

2 weeks to go - Mending Small Hearts

Posted by Kylie Flament on 2 July 2016

Just two weeks to go until the Mending Small Hearts gala dinner on 16 July.  This wonderful event sold out several weeks ago and promises to be a great evening.  A huge thank you to the organisers.  We look forward to seeing you on the night!

For more information, head to the Mending Small Hearts Facebook page.

Posted in: Fundraisers How you can help Patients  

Harley is my Heart Hero

Posted by Kylie Flament on 29 June 2016

Harley was one of our patients who sadly passed away just recently.  His family and friends are honouring his life by selling "Harley is my Heart Hero" t-shirts and doing a series of fundraisers.

The Facebook page is available here, including Harley's story.  The family made the news with their fundraising efforts, and we cannot thank them enough for supporting the work that we do at the Heart Centre for Children.  Harley's memory will certainly live on.

Posted in: Fundraisers Patients  

Mending Small Hearts

Posted by Kylie Flament on 3 May 2016
We were very excited to see one of our families in the news, and to hear about the Mending Small Hearts gala dinner they are putting together.  The goal of the Mending Small Hearts charity event is to raise money towards new equipment two ECG machines and a cardiac ultrasound machine. The hospital treats up to 3500 children with congenital heart disease each year. Mrs Roy says despite the ongoing challenges, Ethan is a happy baby. "He's easygoing, and takes everything in his stride," she said. "He has an amazing team of carers, so we want to give back to say thanks for everybody who has effectively saved his life." The gala dinner is on July 16 at Doltone House, Sylvania Waters. Contributions can be made through monetary donations, vouchers or goods for a silent auction and raffle, or table sponsorship. Click here to read Ethan's full story and how his family are helping us. ...
Posted in: Fundraisers How you can help Patients  

Our new Heart Lung Machine

Posted by Kylie Flament on 22 April 2016

We held a celebratory event on Monday to thank the major donors and fundraisers who made the purchase of a new Heart Lung Machine possible.  Over 700 people contributed to the funds needed to get this machine, which acts as the heart and lungs for a patient during bypass surgery.  We were overwhelmed by the generosity of the community, both in dollar value and in the time and effort that went in to so many fundraising events.  Thank you all. 

This video explains a little more about how much it means to us:

 

 

Posted in: Equipment Fundraisers Media Patients Thank You's  
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