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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

The Australian and New Zealand (ANZ) Fontan Registry

What is the Fontan procedure?

The Fontan procedure is an operation performed in children whose heart has only one main pumping chamber or ventricle. The operation creates a one way circulation for blood flow through the heart to the body then directly back to the lungs. The Fontan procedure has allowed children with the most complex forms of heart disease to enjoy a mostly normal life.

What is the ANZ Fontan Registry?

The ANZ Fontan Registry commenced in 2009 and is a database collecting health information on adults and children who have had a Fontan procedure living in Australia and New Zealand.

The Fontan operation has been performed for more than 40 years, but the outcomes and best ongoing treatment is still unknown. The registry allows doctors and researchers to improve current treatments options and health outcomes for patients. If you or your child have had a Fontan procedure and would like to participate in the Fontan Registry, or would like more information, please visit - or get in touch with the Fontan Registry coordinator at the Heart Centre for Children via our contact page.

What is the Australian and New Zealand Fontan Advisory Committee (ANZFAC)?

They are an enthusiastic group comprised of people with a Fontan circulation, parents of adults/children with a Fontan circulation, health professionals, and other individuals who are involved in the Fontan community. They live across both Australia and New Zealand. To find out more please click here.

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