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RECENT NEWS & EVENTS

From the Heart Study: It's not too late to be part of this important study!

Feb 02 2017
From the Heart is an Australia and New Zealand Fontan Registry research study open to children, young people and adults with a Fontan circu...

Soccer marathon bigger and better than ever

Sep 06 2016
The 5th annual 24-hour soccer marathon was held in Dural this weekend and the team far exceeded their fundraising goal, bringing in an incredibl...

Wagga Wagga spring cocktail party

Sep 01 2016
The Bald and the Beautiful Spring Cocktail Party, being held in Wagga Wagga on 17 September, is a celebration and fundraiser for the Heart Centr...

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News & Events

 

From the Heart Study: It's not too late to be part of this important study!

Posted by Nina Klug on 2 February 2017
From the Heart is an Australia and New Zealand Fontan Registry research study open to children, young people and adults with a Fontan circulation, and their parents and siblings. The study is focused on better understanding the health, wellbeing and experiences of people of all ages with a Fontan circulation, as well as the experiences of their parents, brothers and sisters.  The study is coordinated by Laura Mitchell at the Heart Centre for Children and the University of NSW in Sydney, in collaboration with the ANZ Fontan Registry and involves filling in one questionnaire at home. If you or your child are a part of the ANZ Fontan Registry and would like to know more about how to participate in this study, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to: fromtheheart@mcri.edu.au Click here to take a look at our latest study newsletter. Warmly,
Laura and the From the Heart study team ...
Posted in: Research Doctors Work Patients  

Soccer marathon bigger and better than ever

Posted by Kylie Flament on 6 September 2016

The 5th annual 24-hour soccer marathon was held in Dural this weekend and the team far exceeded their fundraising goal, bringing in an incredible $105,000, to be shared between Neurology, the Cancer Centre and the Heart Centre for Children.

It was a fun day/night/day for everyone involved, and a good run-around for The Children's Hospital at Westmead's "kids vs adults" game between 2 and 4pm on Saturday.  It was heartwarming to be part of such an active, inclusive event that has provided us with the funds to really make a difference to patients and families. This event just keeps getting better each year.  We're already looking forward to what 2017 will bring.

Posted in: Fundraisers Staff Thank You's  

Wagga Wagga spring cocktail party

Posted by Kylie Flament on 1 September 2016

The Bald and the Beautiful Spring Cocktail Party, being held in Wagga Wagga on 17 September, is a celebration and fundraiser for the Heart Centre, organised by a wonderful team of supporters including the parents of one of our patients. 

We look forward to seeing some of our Wagga families there!  Tickets available at https://www.trybooking.com/Booking/BookingEventSummary.aspx?eid=211409

The group's fundraising page can be found at https://give.everydayhero.com/au/raising-money-for-the-heart-centre-for-children

Posted in: Fundraisers  

City2Surf 2016

Posted by Kylie Flament on 15 August 2016
Harley would have been incredibly proud of his family and friends this weekend as they walked or ran the City2Surf along with over 80,000 others, and raised a huge $43,000 to support the Heart Centre for Children.  Sadly Harley passed away earlier this year, but his Mum Danielle wanted to do something to help other kids with heart disease, so she channelled her energy into fundraising.  Here are some photos of the Harley is My Heart Hero (Heart Centre for Children) team from yesterday's 14km race: Harley is My Heart Hero team at the start line   Awards for the highest individual fundraiser (for Harley's Mum, Danielle) and the highest team fundraiser.   Harley's big brother, Bailey, and his friend Josh at the start line   Harley was very much in everyone's thoughts as the sun shone down on the City2Surf 2016   At the end of the race, balloons were released into the sky with m...
Posted in: Fundraisers Thank You's  

Congenital Heart Health

Posted by Kylie Flament on 9 August 2016
National standards need to be developed for mental health care in congenital heart disease (CHD) to help address the significant emotional toll of diagnosis and treatment. In a perspective published in the latest issue of the Medical Journal of Australia A/Prof. Nadine Kasparian from the Heart Centre for Children at The Children's Hospital at Westmead outlines how the need for an integrated approach incorporating physical and mental health is crucial to 'congenital heart health'. CHD affects more than 2,400 babies in Australia each year. It is the leading cause of infant death and one of the leading causes of diseaserelated disability in children under five. Although advances in medicine have drastically improved the survival rate, they bring a range of new challenges including complex treatment choices and the need to transition from paediatric to adult cardiac services. Children with CHD and their families are also more vulnerable to ongoing physical and mental heal...
Posted in: Research  

24 hour Soccer Marathon

Posted by Kylie Flament on 5 July 2016

Are you interested in being part of a 24 hour game of indoor soccer?  The Kicking Goals for Kids soccer marathon is in its fifth year and will take place from 6pm Friday 2 to 6pm Saturday 3 September 2016 in Dural.

It is a fun night and day, with music and a delicious BBQ for all players.  It's a great way to get involved, and perhaps take on a team of Heart Centre staff.

For more information, head to https://give.everydayhero.com/au/kicking-goals-for-sick-kids-2016

We look forward to seeing you there!

Posted in: Fundraisers How you can help  

2 weeks to go - Mending Small Hearts

Posted by Kylie Flament on 2 July 2016

Just two weeks to go until the Mending Small Hearts gala dinner on 16 July.  This wonderful event sold out several weeks ago and promises to be a great evening.  A huge thank you to the organisers.  We look forward to seeing you on the night!

For more information, head to the Mending Small Hearts Facebook page.

Posted in: Fundraisers How you can help Patients  

Harley is my Heart Hero

Posted by Kylie Flament on 29 June 2016

Harley was one of our patients who sadly passed away just recently.  His family and friends are honouring his life by selling "Harley is my Heart Hero" t-shirts and doing a series of fundraisers.

The Facebook page is available here, including Harley's story.  The family made the news with their fundraising efforts, and we cannot thank them enough for supporting the work that we do at the Heart Centre for Children.  Harley's memory will certainly live on.

Posted in: Fundraisers Patients  

Thank you Australian Islamic Mission

Posted by Kylie Flament on 23 June 2016

This year's Ride Your Heart Out 80km cycle challenge raised a huge $12,000 for the Heart Centre for Children.  A big thank you to Omar Eter and Eahab Arja who came and presented us with the cheque today.  They are pictured here with Dr Christian Turner, one of our cardiologists.

We're already looking forward to the 2017 challenge, scheduled for late February next year.  Head to http://www.rideyourheartout.com.au/ for more information.

Posted in: Fundraisers Thank You's  

Mending Small Hearts

Posted by Kylie Flament on 3 May 2016
We were very excited to see one of our families in the news, and to hear about the Mending Small Hearts gala dinner they are putting together.  The goal of the Mending Small Hearts charity event is to raise money towards new equipment two ECG machines and a cardiac ultrasound machine. The hospital treats up to 3500 children with congenital heart disease each year. Mrs Roy says despite the ongoing challenges, Ethan is a happy baby. "He's easygoing, and takes everything in his stride," she said. "He has an amazing team of carers, so we want to give back to say thanks for everybody who has effectively saved his life." The gala dinner is on July 16 at Doltone House, Sylvania Waters. Contributions can be made through monetary donations, vouchers or goods for a silent auction and raffle, or table sponsorship. Click here to read Ethan's full story and how his family are helping us. ...
Posted in: Fundraisers How you can help Patients  
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