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RECENT NEWS & EVENTS

NSW Health Award Finalists - Please VOTE.

Oct 30 2018
Cherishing Children with Heart Disease Please help support the SCHN Cardiac Service by voting for us in the NSW Health People's Choice A...

Cardiology transition workshop for adolescents

Sep 18 2018
Not sure about transitioning to the adult health service? Come along to our workshop and hear about living well with congenital heart disease. ...

A lovely letter from a Heart Centre family

Aug 24 2017
The family of one of our patients has written a beautiful letter of appreciation. It shows how many people and various roles work together to ma...

To view groups of News & Events, please click on one of the following categories:

Awards Fundraisers Patients Thank You's
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News & Events

 

Fontan for Life

Posted on 26 November 2013
Fontan for Life
William was just 38 hours old when he underwent his first heart surgery.  In his short life he has undergone three heart surgeries at the Heart Centre for Children – culminating in the Fontan procedure which he had last year. Now, at six years of age, his mother Lisa Chamberlin says he is a completely different child, who is active and loves to run around with his brother. William is one of over 900 children and adults who are taking part in the largest heart study of its kind in the world, the Fontan Registry and who, this month is hoping to raise awareness of the registry during a campaign called ‘Fontan for Life’ which aims to raise $200,000 for the registry. The Fontan procedure is a lifesaving medical technique used to treat children born with certain serious heart defects. The procedure involves restructuring the heart so that it can operate effectively using only one ventricle, or pumping chamber, as opposed to two. The Fontan procedure is relative...
Posted in: Research Fundraisers How you can help Media Patients  

Volunteers Needed

Posted by Kylie Flament on 21 November 2013
The Children's Hospital at Westmead is looking for volunteers to help with sibling care.  This is a service that we offer families so that siblings of patients can have some time out, playing games, doing craft activities and meeting other kids.  It really helps to be able to give parents a little bit of time to meet with doctors, surgeons and other hospital teams when they need to.  Kids can be in sibling care for an hour or half a day or more, and range from toddlers to pre-teens. The volunteers department is particularly looking for someone who can work Wednesday and Thursday afternoons in sibling care, and would prefer someone with childcare experience.  But they're always looking for help in all sorts of areas, such as escorting families around the hospital to help them find their way, running the volunteer shop or market day, or helping a department with administration work. If you can spare some time, please get in contact with the Volun...
Posted in: How you can help  

Teddy's Special Heart

Posted by Kylie Flament on 20 November 2013
Some kids are born special... like Teddy who has a special heart.  Teddy has had multiple operations already and will need more as he grows, but he's a fighter.  His family have launched a fundraiser, asking for your help to raise money for research into congenital heart disease so that we can understand more about conditions like Hypoplastic Left Heart, which Teddy has.  To read more about Teddy's story and how you can help, click here.  To read more about our research programmes, click here.
Posted in: Fundraisers How you can help  

Monty at the Radiothon

Posted by Kylie Flament on 13 November 2013

Little Monty and his family visited us today for the 2UE Radiothon which is raising much-needed funds for The Children's Hospital at Westmead.

The interview with his Mum Catriona can be found here.

Thank you Monty and co for brightening our day!!

Posted in: Fundraisers Media Patients  

Nine year old Paris' story

Posted by Kylie Flament on 11 November 2013
Diagnosed with SVT two years ago, Paris has had quite a journey to get to where she is today - a healthy, SVT-free young lady.  And a courageous and well-spoken one to boot.  Paris spoke to an audience of 196 guests at the Echo Gala Dinner in September, where she was the belle of the ball and highlight of the night.  Read her speech (her story) here.
Posted in: Patients  

Cardiomyopathy research published

Posted by Kylie Flament on 7 November 2013

Two of our cardiologists, Dr Christian Turner and A/Prof Gary Sholler, were involved in a national study of cardiomyopathy that was published last week in Circulation.  The study found that after the first year following diagnosis, the majority of patients are well and do not need to take medication. 

The paper is entitled 'Long-term outcomes of dilated cardiomyopathy diagnosed during childhood: results from a national population-based study of childhood cardiomyopathy.'

To read the abstract or the full article, click here.

Posted in: Research Doctors Work  

2UE Radiothon 13 November

Posted by Kylie Flament on 4 November 2013

2UE is running a Radiothon to support The Children's Hospital at Westmead and a few staff from the Heart Centre for Children will be manning the phones at various points throughout the day on Wednesday 13 November.  We would love to hear from you and we really appreciate any support that you can offer.  We are currently fundraising for new equipment (including temporary pacemakers for after surgery and a new heart-lung machine for during bypass) and for our research (both genetic and psycho-social).  For more information about the Radiothon, or to donate, head to http://www.2ue.com.au/childrenshospitalappeal.

Posted in: Fundraisers How you can help Media  

Organ Donation article

Posted by Kylie Flament on 4 November 2013
One of our patients and A/Prof David Winlaw, Head of Cardiothoracic Surgery, were in an article in The Australian over the weekend regarding Australia's high levels of support for organ donation but low numbers of donations being made.  Read the full article here: http://www.theaustralian.com.au/news/
Posted in: Media Patients  

$5,000 in just 30 seconds

Posted by Kylie Flament on 1 November 2013

A $5,000 grant is up for grabs and all you need to do is take 30 seconds to click on this link and vote for HEART CENTRE FOR CHILDREN. 

http://www.colonialfirststate.com.au/charity/

We are in need of some temporary pacemakers for children straight after open-heart surgery and this would go a long way towards purchasing one (they're $5,500 each).  These amazing devices make sure that the heart is beating correctly for a few days after surgery, and take over in the case that anything goes wrong.  They can literally save lives.

Please click, and share.

Posted in: Fundraisers How you can help  

NHMRC Grants announced

Posted by Kylie Flament on 30 October 2013
The good news continued this week with the announcement that two research projects that Heart Centre staff are involved in have secured funding from the National Health and Medical Research Council.  The projects are: Improving functional outcomes after Fontan surgery by a cross-sectional study of the outcomes following variation in practice in Australia and New Zealand: focus on anticoagulation and cardiac shunting by the fenestration & Clinical, Genetic and Psychosocial Aspects of Sudden Cardiac Death The competition for these highly-prestigious grants is intense, so we are very proud of A/Prof David Winlaw, Dr Julian Ayer, Dr Nadine Kasparian and everyone else involved. For more information about our research teams and the work that they do, go to http://www.heartcentreforchildren.com.au/kids-heart-research.html. ...
Posted in: Awards Research  
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