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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...




Kids Heart Research Publications - 2018

The team has published 24 peer-reviewed journal publications this year.


Children's experiences of congenital heart disease: A systematic review of qualitative studies
European Journal of Pediatrics, Jan-2018
Chong LSH, Fitzgerald DA, Craig JC, et al.
DOI: 10.1007/s00431-017-3081-y

Cardiovascular Assessment in Human Research
Investigations of Early Nutrition Effects on Long-Term Health, Jan-2018
Haghighi M.M., Ayer J.
DOI: 10.1007/978-1-4939-7614-0_19

Long-Term Outcomes of Hypertrophic Cardiomyopathy Diagnosed During Childhood: Results from a National Population-Based Study
Circulation, Feb-2018
Alexander PMA, Nugent AW, Daubeney PEF, et al.

Analysis of DICER1 in familial and sporadic cases of Transposition of the Great Arteries.
Congenital Heart Disease, Feb-2018
Sabbaghian N, Digilio MC, Blue GM, et al.

Hypoplastic left heart: the next chapter in our unsolved problem.
Heart, Mar-2018
Winlaw DS.

Long Term Survival of Hypoplastic Left Heart Syndrome Infants: Meta-Analysis Comparing Outcomes from the Modified Blalock-Taussig Shunt and the Right Ventricle to Pulmonary Artery Shunt.
International Journal of Cardiology, Mar-2018
Cao J, Phan K, Ayer J, et al.

Tell me once, tell me soon: Parents’ preference for clinical genetics services for congenital heart disease.
Genetics in Medicine, Mar-2018
Kasparian NA, De Abreu Lourenco R, Winlaw DS, et al.

Reproducibility of Cardiac Magnetic Resonance Imaging (CMRI)-Derived Right Ventricular Parameters in Repaired Tetralogy of Fallot (ToF)
Heart, Lung and Circulation, Mar-2018
Gnanappa GK, Rashid I, Celermajer D, et al.

Early Outcomes of Hypoplastic Left Heart Syndrome Infants: Meta-Analysis of Studies Comparing the Hybrid and Norwood Procedures.
The World Journal for Pediatric and Congenital Heart Surgery, Mar-2018
Cao JY, Lee SY, Phan K, et al.

A Screening Approach to Identify Clinically Actionable Variants Causing Congenital Heart Disease in Exome Data.
Circulation: Genomic and Precision Medicine., Mar-2018
Szot JO, Cuny H, Blue GM, et al.

Children and young peoples’ understanding of inherited health conditions and their attitudes towards genetic testing: A systematic review. Clinical Genetics
Clinical Genetics, Apr-2018
McGill BC, Wakefield CE, Vetsch J, et al.

Dedicated cardiac intensive care units: Good for the patient, good for the surgeon.
Journal of Thoracic and Cardiovascular Surgery, Jun-2018
Festa M, Winlaw DS.



Psychosocial Implications of Living with Catecholaminergic Polymorphic Ventricular Tachycardia in Adulthood
Journal of Genetic Counseling, Jun-2018
Richardson E, Spinks C, Davis A, et al.

Genetic burden and associations with adverse neurodevelopment in neonates with congenital heart disease.
American Heart Journal, Jul-2018
Blue GM, Ip E, Walker K, et al.

‘Goldilocks meets heparin dosing – enough but not too much’.
Journal of Thoracic and Cardiovascular Surgery, Jul-2018
Egan JR, Kilo T, Winlaw DS.

Long-Term Outcomes of Childhood Left Ventricular Noncompaction Cardiomyopathy
Circulation, Jul-2018
Shi WY, Moreno-Betancur M, Nugent AW, et al.

Regional consolidation of pediatric cardiac surgery in New York State – Are we there yet? A destination reached or a step in the right direction?
Progress in Pediatric Cardiology, Sep-2018
Winlaw DS, Sholler GF, Barach P.

Is the modified single patch repair superior to double patch repair of complete atrioventricular septal defects?
Interactive CardioVascular and Thoracic Surgery, Sep-2018
Fong L, Winlaw DS, Orr Y.

Emergency Ross Procedure for Pediatric Aortic Valve Myxofibrosarcoma
The Annals of Thoracic Surgery, Sep-2018
Krishna MR, Marathe SP, Maghsoudi A, et al.
DOI: 10.1016/j.athoracsur.2018.07.060

Infective Endocarditis, a Rare Complication of Late Neonatal Group B Strep Sepsis
Frontiers in Pediatrics, Oct-2018
McLennan D, Morgan G.

Identification of clinically actionable variants from genome sequencing of families with congenital heart disease
Genetics in Medicine, Oct-2018
Alankarage D, Ip E, Szot J, et al.

Augmentation of the pulmonary arteries at or prior to the Fontan procedure is not associated with worse long-term outcomes: a propensity – matched analysis from the Australian-New Zealand Fontan Registry.
European Journal of Cardio-Thoracic Surgery, Nov-2018
Shearer L, Justo RN, Marathe SP, et al.

School-age developmental and educational outcomes following cardiac procedures in the first year of life: A population-based record linkage study
Pediatric Cardiology, Dec-2018
Lawley CM, Winlaw DS, Sholler GF, et al.
DOI: 10.1007/s00246-018-2029-y

Hepatic and renal end-organ damage in the Fontan circulation: A report from the Australian and New Zealand Fontan Registry.
International Journal of Cardiology, Dec-2018
Wilson TG, d’Udekem Y, Winlaw DS, et al.


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