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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

Kids Heart Research Publications - 2019


The team has published 36 peer-reviewed journal publications this year.

Creatinine-based estimation of glomerular filtration rate in patients with a Fontan circulation.
Congenital Heart Disease, Jan-2019
Wilson, TG, d’Udekem Y, Winlaw DS, et al.

Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey
Heart, Lung and Circulation, Jan-2019
Strange G, Stewart S, Farthing M, et al.           

Pacemakers are associated with a higher risk of late death and transplantation in the Fontan population.
International Journal of Cardiology, Jan-2019
Poh CL, Celermajer DS, Grigg LE, et al.

Recombinant activated factor VII in neonatal cardiac surgery
European Journal of Cardio-Thoracic Surgery, Jan-2019
Christoff A, Winlaw DS, Curtin J, et al.

Psychological interventions for people affected by childhood-onset heart disease: A systematic review
Health Psychology, Feb-2019
Tesson S, Butow PN, Sholler GF, et al. 
DOI: 10.1037/hea0000704  

Current Challenges and Emergent Technologies for Manufacturing Artificial Right Ventricle to Pulmonary Artery (RV-PA) Cardiac Conduits.
Cardiovascular Engineering and Technology, Feb-2019
Manavitehrani I, Ebrahimi P, Yang I, et al. 

Whole exome sequencing reveals the major genetic contributors to non-syndromic Tetralogy of Fallot.
Circulation Research, Feb-2019
Page D, Miossec M, Fotiou E, et al.

Commentary: Radical Ostioplasty: The way to restore flow after arterial switch operation.
Journal of Thoracic and Cardiovascular Surgery, Feb-2019
Winlaw DS.

The impact of morphological characteristics on late outcomes in patients born with hypoplastic left heart syndrome.
European Journal of Cardio-Thoracic Surgery, Feb-2019
Newland DP, Poh CL, Zannino D, et al.

Commentary: Building evidence to support empiric observations – molecular cross talk or simply crossed wires?
Journal of Thoracic and Cardiovascular Surgery, Feb-2019
Winlaw DS.

Atrioventricular Valve Failure in Fontan Palliation
Journal of the American College of Cardiology, Feb-2019
King G, Ayer J, Celermajer D, et al.

Letter to the Editor. Morphogenetic clarity in considerations of hypoplastic left heart syndrome
Heart, Feb-2019
Winlaw DS.  
DOI: 10.1136/heartjnl-2018-314411

Two Ventricles Are Not Better Than One in the Fontan Circulation: Equivalent Late Outcomes.
The Annals of Thoracic Surgery, Mar-2019
Marathe SP, Zannino D, Shi WY, et al.

Big issues in neurodevelopment for children and adults with congenital heart disease.
Open Heart (BMJ), Apr-2019
Verrall CE, Blue GM, Loughran-Fowlds A, et al.

RACHS-ANZ: A Modified Risk Adjustment in Congenital Heart Surgery Model for Outcome Surveillance in Australia and New Zealand.
Journal of the American Heart Association, May-2019
McSharry B, Straney L, Alexander J, et al.

Weight Gain Trajectories from Birth to Adolescence and Cardiometabolic Status in Adolescence
The Journal of Pediatrics, May-2019
Barraclough JY, Garden FL, Toelle BG, et al.

The degree of left ventricular hypoplasia is associated with tricuspid regurgitation severity in infants with Hypoplastic Left Heart Syndrome.
Open Heart (BMJ), May-2019
Laohachai K, Winlaw DS, Sholler GF, et al. 
DOI: 10.1007/s00246-019-02111-5

Patient-specific approach to mitral valve replacement in in infants weighing 10 kilograms or less.
The World Journal for Pediatric and Congenital Heart Surgery, May-2019
Mater K, Ayer J, Nicholson I, et al.




Study protocol: Nitric oxide during cardiopulmonary bypass to improve Recovery in Infants with Congenital heart defects (NITRIC trial): a randomised controlled trial.
BMJ Open, Jun-2019
Schlapbach LJ, Horton SB, Long DA, et al.

What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review.
Developmental Psychobiology, Jul-2019
Kan JM, Cowan CS, Ooi CY, et al.

Commentary: The right heart-a neglected sibling missing optimal closure.
Journal of Thoracic and Cardiovascular Surgery, Jul-2019
Lee A, Ebrahimi P, Winlaw DS.

Biventricular repair versus Fontan completion for patients with d- or l-transposition of the great arteries with ventricular septal defect and left ventricular outflow tract obstruction.
The Journal of Thoracic and Cardiovascular Surgery, Jul-2019
Sun J, Brizard C, Winlaw DS, et al.

Impact of high risk characteristics in hypoplastic left heart syndrome.
The World Journal for Pediatric and Congenital Heart Surgery, Jul-2019
Salve G, Datar GM, Perumal G, et al.

Double drainage of total anomalous pulmonary venous connection: A rare variant of mixed total anomalous pulmonary venous connection.
Annals of Pediatric Cardiology, Jul-2019
Krishna MR, Gnanappa GK, Mervis J, et al. 
DOI: 10.4103/apc.APC_45_19

Utilization of hospital inpatient resources by children requiring a right ventricle-to-pulmonary artery conduit in the first 10 years of life.
The Journal of Thoracic and Cardiovascular Surgery, Aug-2019
Dalziel K, Huang L, Saxena A, et al.

Prevalence and risk factors for low bone density in adults with a Fontan circulation.
Congenital Heart Disease, Aug-2019
D’Ambrosio P, Tran D, Verrall CE, et al.

Complete atrioventricular septal defect repair in Australia: Results over 25 years.
The Journal of Thoracic and Cardiovascular Surgery, Aug-2019
Fong LS, Betts K, Bell D, et al.

Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis.
Progress in Pediatric Cardiology, Sep-2019
Kasparian NA.

Severe right ventricular dilatation after repair of Tetralogy of Fallot is associated with increased left ventricular preload and stroke volume.
European Heart Journal: Cardiovascular Imaging, Sep-2019
Gnanappa GK, Celermajer DS, Zhu D, et al.

Syncope Due to Ventricular Arrhythmia Triggered by Electronic Gaming.
The New England Journal of Medicine, Sep-2019
Lawley CM, Skinner JR, Turner C. 
DOI: 10.1056/NEJMc1905537

Long-term Outcomes of the Fontan Operation in Patients with Total Anomalous Pulmonary Venous Drainage.
The Annals of Thoracic Surgery, Oct-2019
Yong MS, Zhu MZL, du Plessis K, et al.

A Dramatic Response to Sirolimus Therapy in a Premature Infant With Massive Cardiac Rhabdomyoma.
JACC Case Reports, Oct-2019
Lawley C, Popat H, Wong M, et al.

Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease.
The Journal of Pediatrics, Oct-2019
Denniss DL, Sholler GF, Costa DSJ, et al.

Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice.
Early Human Development, Dec-2019
Kasparian NA, Kan J, Sood E, et al.

Functional genomics and gene-environment interaction highlight the complexity of Congenital Heart Disease caused by Notch pathway mutations.
Human Molecular Genetics, Dec-2019
Chapman G, Moreau JLM, Ip E, Szot JO, et al.

Heterotaxy Is Not a Risk Factor for Adverse Long-Term Outcomes After Fontan Completion.
The Annals of Thoracic Surgery, Dec-2019
Marathe SP, Zannino D, Cao J, et al.



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