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Lunch in the Heart of Sydney

Sep 04 2023
Lunch in the Heart of Sydney Friday 29th September 2023 This year the Heart Centre for Children and Kids Heart Research are coordinating our firs...

Rising Star Award

Feb 22 2022
We would like to congratulate Dr Gillian Blue from Kids Heart Research, Heart Centre for Children who was awarded the Rising Star Award at the 2021...

Team Harley - City2Surf 2017

Jun 27 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing...

2022 Publications from Kids Heart Research

The team has published 45 peer-reviewed journal publications this year.


Melody valve insertion for relief of "Tricuspid" stenosis in an unbalanced atrioventricular septal defect
Cardiology in the Young, Jan-2022
Menahem S, Roberts PA, Tanous D.

Somatic, psychological and economic benefits of regular physical activity beginning in childhood
Journal of Paediatrics and Child Health, Jan-2022
Fitzgerald SA, Fitzgerald HT, Fitzgerald NM.

Exercise Intolerance, Benefits, and Prescription for People Living With a Fontan Circulation: The Fontan Fitness Intervention Trial (F-FIT)-Rationale and Design
Frontiers in Pediatrics, Jan-2022
Tran DL, Gibson H, Maiorana AJ, et al.

Whole genome sequencing in transposition of the great arteries and associations with clinically relevant heart, brain and laterality genes.
American Heart Journal, Feb-2022
Blue GM, Mekel M, Das D, et al. 
DOI: 10.1016/j.ahj.2021.10.185

Fontan operation at less than 3 years of age is not a risk factor for long-term failure
European Journal of Cardio-Thoracic Surgery, Feb-2022
Cao JY, Marathe SP, Zannino D, et al.

The Ross/Ross-Konno procedure in infancy is a safe and durable solution for aortic stenosis
The Journal of Thoracic and Cardiovascular Surgery, Feb-2022
Luxford JC, Ayer JG, Betts K, et al.

The Australian National Standards of Care for Childhood-Onset Heart Disease (CoHD).
Heart, Lung and Circulation, Feb 2022.
Sholler G, Selbie L.
DOI: 10.1016/j.hlc.2021.09.009

Deleterious variants in CRLS1 lead to cardiolipin deficiency and cause an autosomal recessive multi-system mitochondrial disease
Human Molecular Genetics, Feb-2022
Lee RG, Balasubramaniam S, Stentenbach M, et al.

Correlation of ventricular septal defect height and outcomes after complete atrioventricular septal defect repair
Interactive CardioVascular and Thoracic Surgery, Feb-2022
Fong LS, Youssef D, Ayer J, et al.

Preliminary assessment of paediatric electrophysiology cardiac implantable electronic device resources around the world
Cardiology in the Young, Apr-2022
Corcia MC, Cohen MI, Paul T, Skinner JR, Shah M.

Increasing Use of Neonatal Catheter Intervention for Pulmonary Atresia With Intact Ventricular Septum: Management Trends From a Single Centre
Heart, Lung and Circulation, Apr-2022
Lawley C, Hockey K, Yeo LL, Liava’a M, Roberts P.

Impairments in Pulmonary Function in Fontan Patients: Their Causes and Consequences
Frontiers in Pediatrics, Apr-2022
Laohachai K, Ayer J.

Branch pulmonary artery stent angioplasty in infants less than 10 kg
International Journal of Cardiology Congenital Heart Disease, Apr-2022
Cao BL, Mervis J, Adams P, Roberts P, Ayer J.

Nocturnal enuresis and sudden death—For whom the bell tolls?
Heart Rhythm, May-2022
Skinner JR, Caldwell PHY.

CHDgene: A Curated Database for Congenital Heart Disease Genes
Yang A, Alankarage D, Cuny H, et al.

Technique of Coronary Button Transfer Has no Impact on Neoaortic Root Size in Simple Transposition
Seminars in Thoracic and Cardiovascular Surgery, May-2022
Salve GG, Edington AK, Vijayaraghavan A, et al.

Holter Recordings at Initial Assessment for Long QT Syndrome: Relationship to Genotype Status and Cardiac Events
Journal of Cardiovascular Development and Disease, May-2022
Waddell-Smith KE, Chaptynova AA, Li J, et al. 

Revisiting QT prolongation in acute rheumatic fever – Relevance for hydroxychloroquine treatment
International Journal of Cardiology, May-2022
Perelini F, Agnew J, Skinner JR, et al.

Integrated psychological care in pediatric hospital settings for children with complex chronic illness and their families: a systematic review
Psychology & Health, May-2022
Marshall KH, Pincus KH, Tesson S, et al.

Impact of Fontan Fenestration on Long-Term Outcomes: A Propensity Score-Matched Analysis
Journal of the American Heart Association, Jun-2022
Daley M, Buratto E, King G, et al.


Older age at Fontan completion is associated with reduced lung volumes and increased lung reactance
International Journal of Cardiology, Jun-2022
Laohachai K, Badal T, Thamrin C, et al.

Safety and efficacy of exercise training in children and adolescents with congenital heart disease: A systematic review and descriptive analysis
American Heart Journal, Jun-2022
Anderson CAJ, Suna JM, Keating SE, et al.

Cardiac Society of Australia and New Zealand (CSANZ) Position Statement on the Follow-Up of Cardiovascular Implantable Electronic Devices 2022
Heart, Lung and Circulation, Jun-2022
Leitch J, Asakai H, Dawson L, et al.

Effect of Nitric Oxide via Cardiopulmonary Bypass on Ventilator-Free Days in Young Children Undergoing Congenital Heart Disease Surgery: The NITRIC Randomized Clinical Trial
JAMA, Jun-2022
Schlapbach LJ, Gibbons KS, Horton SB, et al. 
DOI: 10.1001/jama.2022.9376

A New Era of Genetic Testing in Congenital Heart Disease: A Review
Trends in Cardiovascular Medicine, July-2022
Morrish AM, Smith J, Enriquez A, et al.
DOI: 10.1016/j.tcm.2021.04.011

Associations between Bodyweight and Clinical Outcome in Patients Post-Fontan Procedure: A Systematic Review
Congenital Heart Disease, Jul-2022
Payne E, Wilson T, Haghighi M, et al.

Investigation of sudden cardiac arrest: Time to put guidelines into practice
Resuscitation, Jul-2022
Skinner JR, Kumar S.

Fetal heart block: Vaginal delivery an option.
Australian and New Zealand Journal of Obstetrics and Gynaecology, Jul-2022
Gebara SA, Melov SJ, Alahakoon TI, Sholler G, Nayyar R.

A diffusion MRI study of brain white matter microstructure in adolescents and adults with a Fontan circulation: Investigating associations with resting and peak exercise oxygen saturations and cognition
NeuroImage: Clinical, Aug-2022
Verrall CE, Chen J, Yeh CH, et al.

Ten Years of Percutaneous Pulmonary Valve Implantation in Australia and New Zealand
Heart, Lung and Circulation, Aug-2022
Lawley CM, Tanous D, O’Donnell C, et al.

Left vocal cord palsy as a presenting feature of congenital cardiac disease
Journal Paediatrics and Child Health, Sep-2022
Davidson H, Syed K, Skinner JR, Cooper S.
DOI: 10.1111/jpc.16198

Cheyne-stokes Respiration in Children with Heart Failure
Paediatric Respiratory Reviews, Sep-2022
Singh J, Zaballa K, Kok H, et al. 
DOI: 10.1016/j.prrv.2022.03.001

Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis
Health Psychology Review, Sep-2022
Tesson S, Butow PN, Marshall K, Fonagy P, Kasparian NA.

Body Mass Index Trajectory and Outcome Post Fontan Procedure
Journal of the American Heart Association, Sep-2022
Payne E, Garden F, d’Udekem Y, et al.

Discovering the heart
Australian Nursing & Midwifery Journal, Sep-2022
Kim EJ, Dixon M, Bergin H.

Four C’s- The key to supporting paediatric cardiac care closer to home
Australian Nursing & Midwifery Journal, Sep-2022
Ingold E, Meltz L, Scarfe G, Vitellaro J, Dinsmore N.

Developmental rounds for paediatric cardiac patients
Australian Nursing & Midwifery Journal, Sep-2022
Kim EJ, Donaldson F.

The Australian and New Zealand Fontan Registry Quality of Life Study: Protocol for a population-based assessment of quality of life among people with a Fontan circulation, their parents, and siblings. 
BMJ Open, Sep-2022
Marshall KH, d'Udekem Y, Winlaw DS, et al. 
DOI: 10.1136/bmjopen-2022-065726

Life-threatening cardiac arrhythmia and sudden death during electronic gaming: An international case series and systematic review
Heart Rhythm, Oct-2022
Lawley CM, Tester M, Sanatani S, et al.

Scaling Peak Oxygen Consumption for Body Size and Composition in People With a Fontan Circulation
Journal of the American Heart Association, Oct-2022
Wadey CA, Barker AR, Stuart G, et al. 

Infants With Congenital Heart Disease at Risk of Early Atherosclerotic Disease
Journal of the American Heart Association, Nov-2022
Moustafa A, Popat H, Ayer J, et al. 
DOI: 10.1161/JAHA.122.025772

Reply to the Editor—E-Gaming Should Not Equal E-Fear
Heart Rhythm, Nov-2022
Lawley CM, Skinner JR, Turner C.
DOI: 10.1016/j.hrthm.2022.11.018

Cardio-Oncology Recommendations for Pediatric Oncology Patients: An Australian and New Zealand Delphi Consensus
Toro C, Felmingham B, Jessop S, et al.

Insights into the genetic architecture underlying complex, critical congenital heart disease.
American Heart Journal, Dec-2022
Blue GM, Ip E, Troup M, et al.

“The usual challenges of work are all magnified”: Australian paediatric health professionals’ experiences during the COVID-19 pandemic
International Journal of Cardiology Congenital Heart Disease, Dec-2022
Akram F, Pidcock M, Oake D, Sholler GF, Farrar MA, Kasparian NA.
DOI: 10.1016/j.ijcchd.2022.100434






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