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Cardiology transition workshop for adolescents

Sep 18 2018
Not sure about transitioning to the adult health service? Come along to our workshop and hear about living well with congenital heart disease. ...

A lovely letter from a Heart Centre family

Aug 24 2017
The family of one of our patients has written a beautiful letter of appreciation. It shows how many people and various roles work together to ma...

24 Hour Soccerthon

Aug 23 2017
The annual 24 Hour Soccerthon, which is now in its 6th year, will be running from 25-26 August. Each year this event has helped us raise substan...

Tinytopia

 

One of our team, Julia Percich, had entered her artwork for an Art competition this month.  The theme of the competition this year is 'Tinytopia', and Julia's work is shown here. She had won first prize in the 'Adult drawing / painting ' area (in the Department of Adolescent Medicine - Youth Art Program 2014 (Children's Hospital-Westmead)).

I had chosen to draw 3 detailed pictures based around tropical fish and marine life. They are detailed drawings of life in a fish bowl, and the last picture is where a turtle escapes from the fish bowl.  I had previously completed a fish quilt and drew inspiration from this for these pictures, and the diverse marine environment.

I have also completed a series of 'heart cards' used in the Cardiology department (Heart Centre for Children-Westmead) to be sent on behalf of the centre for celebrating the milestones and other events of the heart children and their families.

In my spare time, I have made mosaic pictures, and would be keen to make a mosaic for the heart centre.

 

 

Cardiology transition workshop for adolescents

Posted on 18 September 2018
Cardiology transition workshop for adolescents

Not sure about transitioning to the adult health service? Come along to our workshop and hear about living well with congenital heart disease.

 

Posted in: Research Doctors Work Patients  

A lovely letter from a Heart Centre family

Posted by Nina Klug on 24 August 2017
The family of one of our patients has written a beautiful letter of appreciation. It shows how many people and various roles work together to make the experience as easy as possible for our patients.
Dear Doctors, Nurses and CHW staff Last month my son Daniel was admitted to CHW for open heart surgery. About five weeks before that occurred we also attended your facility for an angiogram in the cardiac catheter laboratory. I am writing to thank those of you who have made a significant event in my life and more so in my son's a wonderful and pleasant event without fault. Dr Jonathan Mervis and his team conducted the procedure in the cat. lab. Dr Mervis is a highly professional doctor who commenced our most recent adventure to CHW with style (this being our fourth surgery not limiting other procedures). Our visit to his lab went smoothly and he managed to clear path for our brilliant heart surgeon to undertake his own role. I am very grateful for Dr Mervis' talen...
Posted in: Doctors Work Patients Thank You's  

24 Hour Soccerthon

Posted by Nina Klug on 23 August 2017

The annual 24 Hour Soccerthon, which is now in its 6th year, will be running from 25-26 August. Each year this event has helped us raise substantial funds (over $100k last year!) for the Heart Centre for Children and other departments at The Children's Hospital at Westmead, and it would be wonderful if we could show our support for this effort. It is a fun afternoon playing futsal (indoor soccer), socialising and spending time with your family. We look forward to seeing some of our patients, families and supporters there!

The Heart Centre for Children's allocated timeslot is Saturday 26 August from 2-4pm.

Posted in: Fundraisers  

Team Harley - City2Surf 2017

Posted by Kylie Flament on 27 June 2017
Mum Danielle puts it beautifully: "Why we started Team Harley: To raise awareness for Congenital Heart Disease in memory of our amazing little heart angel Harley and raise much needed funds to the one place that was our second home." Watch a short video of Danielle and Harley's story. Team Harley came together for the City2Surf 2016, raising $43,000 for the Heart Centre for Children.  This year, they're aiming for $50,000, to purchase two ECG machines and some other items for our inpatient area, Edgar Stephen Ward.  For more about Team Harley's efforts, head to the Team Harley Facebook Event page or, to donate, go straight to their EveryDayHero page.  They're also hosting a Night for the Superheroes of the Edgar Stephen Ward.
Date: Saturday 5 August 2017
Time: From 6.30pm
Location: Riverstone Schofields Memorial Club
Tickets: $50
More information: See Facebook page (link above) or contact Danielle on 0424...
Posted in: Fundraisers Patients  

Halor's story

Posted by Kylie Flament on 23 June 2017
One of our patients, Halor, was featured on The Children's Hospital at Westmead's Facebook page this week:     "Born weighing just less than a bag of flour, Halor was a very little baby entering a very big world. Even smaller though was his tiny heart, which due to a serious heart condition, was working overtime to pump blood to the rest of his body. Surgery was vital to fix Halor's heart and is ultimately the reason, 11 years on; he is able to run the City2Surf. This August, Halor will be running as part of City2Surf - Team Bandaged Bear not only to give back to the doctors and nurses who helped him, but also to raise money for other children with heart conditions. You can go the distance #forsickkids too by registering as part of Team Bandaged Bear or by making a donation. Visit www.bandagedbear.org.au/event/city2surf"...
Posted in: Patients  

Piloting a smartphone app

Posted by Kylie Flament on 12 May 2017

The Children's Hospital at Westmead will soon be piloting a new smartphone app that allows patients and families to see their upcoming appointments and, in future, to access important documentation and education.  Some patients at the Heart Centre for Children will be invited to try this app starting from late May.

For more information, visit the My Health Memory overview on the SCHN website.

Posted in: Patients  

From the Heart Study: It's not too late to be part of this important study!

Posted by Nina Klug on 2 February 2017
From the Heart is an Australia and New Zealand Fontan Registry research study open to children, young people and adults with a Fontan circulation, and their parents and siblings. The study is focused on better understanding the health, wellbeing and experiences of people of all ages with a Fontan circulation, as well as the experiences of their parents, brothers and sisters.  The study is coordinated by Laura Mitchell at the Heart Centre for Children and the University of NSW in Sydney, in collaboration with the ANZ Fontan Registry and involves filling in one questionnaire at home. If you or your child are a part of the ANZ Fontan Registry and would like to know more about how to participate in this study, please contact Laura Mitchell on 1800 025 509 (free call from anywhere in Australia) or send an email to: fromtheheart@mcri.edu.au Click here to take a look at our latest study newsletter. Warmly,
Laura and the From the Heart study team ...
Posted in: Research Doctors Work Patients  

Soccer marathon bigger and better than ever

Posted by Kylie Flament on 6 September 2016

The 5th annual 24-hour soccer marathon was held in Dural this weekend and the team far exceeded their fundraising goal, bringing in an incredible $105,000, to be shared between Neurology, the Cancer Centre and the Heart Centre for Children.

It was a fun day/night/day for everyone involved, and a good run-around for The Children's Hospital at Westmead's "kids vs adults" game between 2 and 4pm on Saturday.  It was heartwarming to be part of such an active, inclusive event that has provided us with the funds to really make a difference to patients and families. This event just keeps getting better each year.  We're already looking forward to what 2017 will bring.

Posted in: Fundraisers Staff Thank You's  

Wagga Wagga spring cocktail party

Posted by Kylie Flament on 1 September 2016

The Bald and the Beautiful Spring Cocktail Party, being held in Wagga Wagga on 17 September, is a celebration and fundraiser for the Heart Centre, organised by a wonderful team of supporters including the parents of one of our patients. 

We look forward to seeing some of our Wagga families there!  Tickets available at https://www.trybooking.com/Booking/BookingEventSummary.aspx?eid=211409

The group's fundraising page can be found at https://give.everydayhero.com/au/raising-money-for-the-heart-centre-for-children

Posted in: Fundraisers  

City2Surf 2016

Posted by Kylie Flament on 15 August 2016
Harley would have been incredibly proud of his family and friends this weekend as they walked or ran the City2Surf along with over 80,000 others, and raised a huge $43,000 to support the Heart Centre for Children.  Sadly Harley passed away earlier this year, but his Mum Danielle wanted to do something to help other kids with heart disease, so she channelled her energy into fundraising.  Here are some photos of the Harley is My Heart Hero (Heart Centre for Children) team from yesterday's 14km race: Harley is My Heart Hero team at the start line   Awards for the highest individual fundraiser (for Harley's Mum, Danielle) and the highest team fundraiser.   Harley's big brother, Bailey, and his friend Josh at the start line   Harley was very much in everyone's thoughts as the sun shone down on the City2Surf 2016   At the end of the race, balloons were released into the sky with m...
Posted in: Fundraisers Thank You's  
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